We just got back from a two day trip to Denver. Hannah saw the orthopedic doctor Wednesday and the Rheumatologist on Thursday. The plane ride was terrifying but we got great news at both appointments! Hannah’s head has made a 7mm change for the good, so the helmet is working!!! Only a few more months to go! Although i dont know what they will do about keeping her safe from falls. The doctors say that any slight bump to the head can cause another bleed and the helmet prevents so much with her beginning to crawl and pull up on things. I guess we will cross that bridge when we get there.
The Rheumatologist says he thinks the Reynauds is improving and she may outgrow it by adulthood! We will not be putting her on any beta blockers for now and will keep praying that it goes away and she doesnt develop any autoimmune disorders in the mean time. Please continue to keep her in your prayers as she still has a ways to go. We will be going back to Denver in early September to see the neurologist and ortho doc again. God bless!