For the last six months Hannah’s white blood cells have been abnormal. Her nuetrophils are always low with this last one being 282! Her platelets go from being too high one draw to to low the next, and her lymphocytes are always really high. The doctors have been doing a wait and see approach and she is constantly sick. This last Sunday we were at her birthday party when all of the sudden she started crying and holding her head. She would barely open her eyes and when i picked her up she was burning up. We went home and gave her tylenol but for the next three days her fever ranged from 101.5 to 104.7 and she would cry so bad constantly holding her head. She has several swollen lymph nodes in her head that have been there for several months without going down.Took her to the ER on monday where they gave her some antibiotics and sent her home. Wednesday we took her in to see the pediatrician because she seemed to be getting worse and they were very concerned. Dr Christy thought she might have had an infection in her brain and told us to go home and pack a bag and then go straight to the hospital where they would do some blood work and probably transfer her to Denver.
When we got to the hospital they drew blood, used a catheter to get urine, did chest xrays, and a ct of her head. When the results came back they didn’t think she was critical enough to be transfered but said that her platelets were a little low and she was severely neutropenic. The sent the blood out for a perepheral smear and told us that she would probably need a bone marrow biospy to check for blood cancers and other things.
Well, we got the results back and it showed that Hannah has Leukopenia with Nuetropenia, low platelets, normochromic microcytic anemia and atypical lympocyes. We are now going back to the children’s hospital in Denver on Tuesday and she will see the hematologist/oncologist on Wednesday morning and then have a bone marrow biopsy and aspiration after that. She will also see her neurologist on Thursday morning to see why she is having all of these headaches. Here is a pic of her when the headaches begin. She looks absolutely miserable. 😦